JUNE 6-10, 2022

Thanks for joining us!

Day three of Kidney Action Week was a great day, thank you for joining us. Check out tomorrow’s agenda by clicking the button below.
If you missed a session, click “Agenda” in the main menu to watch today’s recordings.

Tomorrow’s Agenda: Thursday, June 9

Health Insurance and the Impact of Kidney Disease on Finances

Session Info:

Living with kidney disease can present many financial constraints due to increased expenses associated with purchasing healthier food, medicines, and treatments, despite Medicare coverage. Panelists will provide an overview of ESRD Medicare eligibility, highlight out-of-pocket costs associated with dialysis and transplant, and links to resources available to assist patients through what can be an overwhelming time.

Speakers:

  • Mike Spigler, MCHES – Vice President of Patient Support & Education, American Kidney Fund​

  • Rochelle Blum, MS – Licensed Clinic Social Worker

  • Grace M Settle, LCSW-C, MSW – Kidney Transplant Clinical Social Worker II, Johns Hopkins Hospital​

Sponsored By:

Sponsor Name

A moment to inspire: Tamara Y. Walker

Session Info:

The American Kidney Fund relies on Kidney Health Coaches to raise awareness about kidney disease and its risk factors in communities nationwide. Tamara Y. Walker is a great example of how sharing your story can inspire and educate your community about kidney disease.

COVID-19: Returning to Normal for the lmmunocompromised

Session Info:

While many people may experience mild to moderate COVID-19 symptoms, people living with kidney disease or a transplant are at a higher risk of becoming severely ill with COVID-19. Dr. Robert Montgomery and Dr. Sapna Mehta will give an overview of monoclonal antibodies and how they can be used in addition to the COVID-19 vaccines. Dr. Montgomery and Dr. Mehta will also speak about what ‘return to normal’ means for individuals who are immunocompromised and what all of us can do to help protect those who are the most vulnerable to COVID-19.

Speakers:

  • Melanie Paris, MA MPH – Senior Director of Strategic Partnerships and Education, American Kidney Fund

  • Sapna Mehta, MD, FIDSA – Director, Transplant Infectious Diseases NYU Langone Transplant Institute

  • Robert A. Montgomery, MD, DPhil, FACS – H. Leon Pachter Chair and Professor of Surgery; Director, NYU Langone Transplant Institute, NYU Langone Health

Sponsored By:

Sponsor Name

Kidney Kitchen demonstration: Lunch with Dr. Blake Shusterman, “The Cooking Doc”

Session Info:

Join Dr. Blake Shusterman, “The Cooking Doc”, as he guides us through how to make a tasty and kidney friendly Vegan Bolognese.

ADPKD: How to Work with Your Doctor, Talk to Your Family and Find Support

Session Info:

Autosomal dominant polycystic kidney disease (ADPKD) is a genetic condition that causes clusters of cysts to grow on the kidneys. Most people who have ADPKD eventually see the disease progress into kidney failure, requiring dialysis or a kidney transplant. 

In this session, speakers will provide an overview of ADPKD – including diagnosis, prognosis, treatment and management. Session discussions will focus on the importance of managing ADPKD at each stage, ways to start conversations with health care providers and family members, as well as how to find support and resources. 

This session is made possible thanks to the generous support from Otsuka America Pharmaceutical, Inc.

Speakers:

  • Mike Spigler, MCHES – Vice President of Patient Support & Education, American Kidney Fund

  • Olufunke ‘Funke’ Oujuri – Peer Ambassador, Polycystic Kidney Disease Foundation

  • Chris P. Rusconi, PhD – Chief Research Officer, Polycystic Kidney Disease Foundation

  • Tamara Y. Walker – American Kidney Fund Ambassador, Living with Kidney Disease

Sponsored By:

Sponsor Name

All About Kidney Stones: Causes, Types, Treatment and Prevention

Session Info:

Kidney stones are a common problem, affecting over half a million people every year. One in 10 people will have a kidney stone at some point in their lives, and about 80% of those stones will be the calcium oxalate type.

In this session, our panelists will give an overview of what a kidney stone is, its signs and symptoms and common risk factors. Our panelists will also describe the multiple types of stones and how finding out which type of stone you have may help improve your treatment options and prevention strategies. 

Participants will leave with a better understanding of kidney stones that will empower them to speak with their health care providers, especially if they have already experienced frequent or multiple kidney stones.

This session is made possible thanks to the generous support from Alnylam Pharmaceuticals.

Speakers:

  • Mike Spigler, MCHES – Vice President of Patient Support & Education, American Kidney Fund

  • Kim Hollander – Executive Director, Oxalosis & Hyperoxaluria Foundation

  • John C. Lieske, MD – Nephrologist & Professor of Medicine, Mayo Clinic Division of Nephrology and Hypertension

  • David Sas, DO, MPH – Pediatric Nephrologist, Mayo Clinic

  • LeighAnn Saylor – Founder & Executive Director of Mulligans Living Kidney Donors, American Kidney Fund Ambassador

  • Jamie Lynn Schmitt – Parent & Patient Advocate, Oxalosis & Hyperoxaluria Foundation

Sponsored By:

Sponsor Name

Chair yoga with Lakshmi Voelker

Session Info:

Get fit where you sit during this adaptive yoga class. Lakshmi Voelker, the creator of chair yoga, will show us how easy it is to stay active even when you feel limited. Join us to learn how you can do yoga in any chair at any time.

RE-BROADCAST: Ask “The Cooking Doc:” Q & A with Nephrologist, Dr. Blake Shusterman, MD

Session Info:

Choosing the right foods is key to managing kidney disease at every stage. Whether you are on dialysis, were just diagnosed with kidney disease, have a kidney transplant or are somewhere in between, understanding what foods to eat and in what amount can help you successfully manage kidney disease.

Dr. Blake Shusterman, aka The Cooking Doc, will provide insights into eating well with kidney disease, combining his expertise as a practicing nephrologist and a published cookbook author. The Cooking Doc is bringing his “Change Your Buds” message to Kidney Action Week through an interactive question and answer session that will discuss common challenges with eating with kidney disease and offer strategies for eating within dietary guidelines, while still enjoying food.

Speakers:

  • Melanie Paris, MA MPH – Senior Director of Strategic Partnerships and Education, American Kidney Fund

  • Blake Shusterman, MD, Nephrologist & The Cooking Doc

Sponsored By:

Sponsor Name

Thank you to our Kidney Action Week Sponsors!

Nation’s leading kidney nonprofit

Fighting on All Fronts

AKF works on behalf of the 37 million Americans living with and at risk for kidney disease. From prevention to life after a transplant, AKF supports people wherever they are in their fight against kidney disease.

Contact us at [email protected] if you have questions or need help registering.

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