JUNE 6-10, 2022

Welcome to Kidney Action Week Day 3!

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Day three of Kidney Action Week is here! Thank you for joining us. Check out today’s agenda by clicking the button below. While you’re waiting for your sessions to start, spend some time connecting with your fellow Kidney Action Week participants using our chat box.

Today’s Agenda: Wednesday, June 8

Kidney Transplant: Navigating the Waitlist

Session Info:

The life-changing experience of receiving a kidney transplant all starts with the referral for evaluation. When considering a patient for a kidney transplant, the evaluation team considers the patient’s physical health, mental health, and finances. In this session, the panelists will provide an overview of the transplant evaluation process, explain how this process can lead to inequities in who receives a transplant, and empower patients to take an active role in conversations with their health providers. This talk will be brought to life by a patient who has been through this process multiple times and can offer hope for patients considering this option.

Speakers:

  • Shayla Harris – Associate Director of Administration, American Kidney Fund 

  • Mary Baliker, BS – Healthcare Consultant, American Kidney Fund Ambassador

  • Hannah Graves, LMSW – Transplant Outreach Social Worker, Piedmont Transplant Institute

  • Velma Scantlebury-White, MD, FACS – Professor of Surgery at TCU and UNTHSC

Kidney Kitchen demonstration: Breakfast with Chef Linda Blaylock

Session Info:

Join Chef Linda Blaylock, as she guides us through how to make a tasty and kidney friendly Polenta & Egg Breakfast Cup.

Stage 3 CKD: Diabetes and Kidney Disease

Session Info:

The “silent” nature of stage 3 chronic kidney disease (CKD) often leads to a delayed diagnosis, and subsequently delayed treatment. Because diabetes is the leading cause of CKD, individuals with diabetes should have their primary care provider regularly test them for kidney disease to ensure a timely diagnosis and treatment intervention to slow progression. Panelists will discuss diabetic kidney disease (DKD), ways to manage DKD through testing, medicine, and working with a dietitian. In addition, one of the panelists brings the perspective of living with DKD and will share his experience and changes he made to his lifestyle that made a difference.

This session is made possible thanks to generous support from Boehringer lngelheim/Lilly.

Speakers:

  • Ryan Woolley, MSPH, RDN – Director of Public Education, American Kidney Fund

  • Patrick O. Gee, PhD, JLC – Founder & CEHD, iAdvocate

  • Amanda Lane, MS, RD, CDCES – Renal Dietitian, Healthful Lane

  • Margaret Yu, MD, MS – Clinical Associate Professor, Stanford University School of Medicine

Sponsored By:

Sponsor Name

A moment to inspire: Pediatric kidney patients

Session Info:

AKF fights for the futures of kidney patients and their families. Listen to how these kids are fighting for a better tomorrow.

The Past, Present and Future of Testing for Kidney Disease

Session Info:

With all the changes in kidney disease testing over the years, it can be unclear which tests provide the most accurate diagnosis. In this session, the panelists will be providing an overview of the landscape of kidney disease testing from the past, present, and future. The panelists will review the most common tests used to date (UACR and eGFR) and discuss the issues associated with each. In addition, the panelists will highlight recent changes to the eGFR equation and will discuss the future of kidney disease testing (cystatin-C, biomarkers, etc.). The goal of this session will be to bring awareness to the changes in kidney disease testing to empower the public to advocate for the test that is best for them.

Speakers:

  • Julie Wright Nunes, MD, MPH – Associate Professor of Medicine, Department of Internal Medicine, University of Michigan Health System

  • Lesley A. Inker, MD, MS, FRCP © – Professor at Tufts University School of Medicine and Medical Director of the Kidney And Blood Pressure Center

  • O. Alison Potok, MD – Assistant Professor of Clinical Medicine, University of California San Diego

Sponsored By:

Sponsor Name

We All Should Care About APOL 1-Mediated Kidney Disease

Session Info:

The Apolipoprotein L 1 (APOL 1) gene is part of the APOL gene family, which plays a role in innate immunity, our body’s built-in system to fight threats. In some individuals, this gene has evolved to protect against a parasite that causes African human trypanosomiasis (African sleeping sickness); unfortunately, this protection against one disease has also been shown to cause significant kidney damage in some. Today, people of African ancestry all around the world may carry these APOL 1 variations, including people who identify as African American, Afro­Caribbean and Latino/Latina. 

Having two variations in the APOL 1 gene is associated with increased risk of kidney disease and even kidney failure, so it’s important to understand your genotype and whether you are at increased risk of kidney disease. For those who have APOL 1-mediated kidney disease (AMKD), early detection can help patients and their physicians choose appropriate treatment, identify potential risk to other family members, and prepare for more rapid disease progression. 

In this session, panelists will provide an overview of the APOL 1 gene and how an individual’s ancestry may play a role in how the gene affects certain populations, especially those of African and Afro-Latin ancestry. Panelists will discuss genetic testing options (how to find out if you have this genetic variant) and how a patient’s life may be affected by a positive APOL 1 genetic test result. 

This session is made possible thanks to the generous support from Vertex Pharmaceuticals Inc.

Speakers:

  • Silas Norman, MD, MPH – Clinical Associate Professor, University of Michigan Health

  • Maggie E. Freese, MS, LGC – Licensed Genetic Counselor, University of Iowa Hospitals & Clinics

  • Opeyemi Olabisi, MD, PhD – Assistant Professor of Medicine, Duke University

Sponsored By:

Sponsor Name

Mental health with Elle Lee, LCSW

Session Info:

Join Licensed Clinical Social Worker, Elle Lee, as she discusses common mental health conditions associated with CKD.

RE-BROADCAST: The Past, Present and Future of Testing for Kidney Disease

Session Info:

With all the changes in kidney disease testing over the years, it can be unclear which tests provide the most accurate diagnosis. In this session, the panelists will be providing an overview of the landscape of kidney disease testing from the past, present, and future. The panelists will review the most common tests used to date (UACR and eGFR) and discuss the issues associated with each. In addition, the panelists will highlight recent changes to the eGFR equation and will discuss the future of kidney disease testing (cystatin-C, biomarkers, etc.). The goal of this session will be to bring awareness to the changes in kidney disease testing to empower the public to advocate for the test that is best for them.

Speakers:

  • Julie Wright Nunes, MD, MPH – Associate Professor of Medicine, Department of Internal Medicine, University of Michigan Health System

  • Lesley A. Inker, MD, MS, FRCP © – Professor at Tufts University School of Medicine and Medical Director of the Kidney And Blood Pressure Center

  • O. Alison Potok, MD – Assistant Professor of Clinical Medicine, University of California San Diego

Sponsored By:

Sponsor Name

Thank you to our Kidney Action Week Sponsors!

Nation’s leading kidney nonprofit

Fighting on All Fronts

AKF works on behalf of the 37 million Americans living with and at risk for kidney disease. From prevention to life after a transplant, AKF supports people wherever they are in their fight against kidney disease.

Contact us at [email protected] if you have questions or need help registering.

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