JUNE 6-10, 2022

Thanks for joining us!

Day four of Kidney Action Week was a great day, thank you for joining us. Check out tomorrow’s agenda by clicking the button below.
If you missed a session, click “Agenda” in the main menu to watch today’s recordings.

Tomorrow’s Agenda: Friday, June 10

Veterans, Kidney Disease and Diabetes: The Mounting Mental Health Burdens of Managing Chronic Diseases

Session Info:

Prevalence of chronic kidney disease among the veteran population is estimated to be 34% higher than the general population. Panelists will discuss the unique experience of veterans living with kidney disease along with a general background on kidney disease and its two leading risk factors: high blood pressure and diabetes. The panelists hope to stimulate a thought-provoking discussion regarding the mental health burdens veterans face when confronted with diagnoses of chronic medical conditions such as kidney disease and diabetes. Additionally, solutions to facilitating mental health care will be explored.

Speakers:

  • Mike Spigler, MCHES – Vice President of Patient Support & Education, American Kidney Fund

  • Angela Giles DBH, LCSW – National Project Coordinator & Veteran Health Administration Social Work Program

• Jacqueline D. Hawkins, PhD, Military Transition Consultant & Non-Profit Veteran Agency

Sponsored By:

Sponsor Name

A moment to inspire: Members of the 37 mile challenge community

Session Info:

See how hundreds of kidney patients, caregivers, friends, and other community members are coming together virtually to walk/run 37 miles to honor the 37 million Americans living with kidney disease.

Understanding lgA Nephropathy (lgAN)

Session Info:

lgAN is a type of autoimmune disease that starts in the gut and over time, causes damage to the kidneys. Although testing urine for protein can indicate lgA nephropathy (lgAN), a kidney biopsy is the only test that give doctors an accurate diagnosis. Panelists will start with an overview of lgA nephropathy, then discuss its various treatment approaches for managing lgAN, including proper eating, ACEs/ARBs and new and emerging medicines. The panelists will also highlight patient resources offered by the lgAN Foundation of America, including its patient registry. 

This session is made possible thanks to the generous support from Calliditas Therapeutics.

Speakers:

  • Tamara Ruggiero, M.Ed. – Vice President of Communications and Marketing, American Kidney Fund

  • Johnathan Barratt, PhD, FRCP – Professor of Renal Medicine, University of Leicester, UK

  • Joseph Michael Byrne – Health Promotion Project Officer, US Army Public Health Center

  • Stuart Miller – Director of Strategic Planning & Government Affairs, IgA Nephropathy Foundation

  • Bonnie Schneider – Founder & Executive Director, IgA Nephropathy Foundation

Sponsored By:

Sponsor Name

Mental health with Elle Lee, LCSW

Session Info:

Join Licensed Clinical Social Worker, Elle Lee, as she guides you through where to find the best accessible mental health resources for CKD from a kidney patient’s experience.

What is Hyperkalemia? : Treatment and Management

Session Info:

Hyperkalemia (high potassium) is a serious problem and often a complication of advanced kidney disease. Hyperkalemia is a higher-than-normal level of potassium in the blood. Although mild cases may not cause symptoms and may be easy to treat, severe cases of hyperkalemia that are left untreated can lead to abnormal heart rhythms or even death.

While hyperkalemia can be managed somewhat by eating low-potassium foods, there are important medicines available that effectively manage this condition. Our panelists will give an overview of hyperkalemia, discuss treatments, and highlight the various no-cost hyperkalemia management resources featured on AKF’s Kidney Kitchen® and our Beyond Bananas™ campaign. 

This session is made possible thanks to the generous support from AstraZeneca.

Speakers:

  • Janelle Gonyea, RDN, LD, FNKF – Clinical Dietitian

  • Nieltje Gedney – Executive Director, Home Dialyzors United

  • Kamyar Kalantar-Zadeh, MD, MPH, PhD, FACP, FASN, FAAP, FAHA, FNKF – Professor and Chief of Nephrology & Hypertension at the University of California, Irvine

Sponsored By:

Sponsor Name

My Journey Living with Kidney Disease: Patient Perspectives

Session Info:

Experiences living with chronic kidney disease (CKD) vary from person to person. While some receive a diagnosis at an earlier stage, many do not, resulting in a delayed diagnosis, kidney failure and a “crash” into needing dialysis. The panelists will be sharing their individual stories about how they navigated their kidney disease journey. They will cover experiences with dialysis, transplant, and making lifestyle changes to slow the progression of CKD. There are so many decisions along the journey and this session highlights multiple perspectives and shows how these decisions impact loved ones as well.

Speakers:

  • Jemetra Collins – Director of Professional Education, American Kidney Fund

  • Charlie Ball – American Kidney Fund Ambassador, Living Kidney Donor

  • Dennis Harris – Previous Peritoneal Dialysis Patient, Kidney and Pancreas Transplant Recipient

  • Kristal Higgins – American Kidney Fund Ambassador, Living with Kidney Disease

  • Julie K Spears – Kidney Health Coach

Sponsored By:

Sponsor Name

Closing Remarks from the American Kidney Fund

Session Info:

With all the changes in kidney disease testing over the years, it can be unclear which tests provide the most accurate diagnosis. In this session, the panelists will be providing an overview of the landscape of kidney disease testing from the past, present, and future. The panelists will review the most common tests used to date (UACR and eGFR) and discuss the issues associated with each. In addition, the panelists will highlight recent changes to the eGFR equation and will discuss the future of kidney disease testing (cystatin-C, biomarkers, etc.). The goal of this session will be to bring awareness to the changes in kidney disease testing to empower the public to advocate for the test that is best for them.

Speakers:

• LaVarne A. Burton, President & Chief Executive Office, American Kidney Fund

Sponsored By:

Sponsor Name

Thank you to our Kidney Action Week Sponsors!

Nation’s leading kidney nonprofit

Fighting on All Fronts

AKF works on behalf of the 37 million Americans living with and at risk for kidney disease. From prevention to life after a transplant, AKF supports people wherever they are in their fight against kidney disease.

Contact us at [email protected] if you have questions or need help registering.

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