SEPTEMBER 13-17, 2021

Finding Answers for the Unknown Causes of Kidney Disease: A Roadmap for Change

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Featured speakers

LaVarne Burton

President and CEO, American Kidney Fund

Michael Spigler, MCHES

VP of Patient Services and Kidney Disease Education, American Kidney Fund

Trudy McKanna, MS, CGC

Director of Medical Education, Natera

Dr. Ogo Egbuna, MD, MSc, FASN

Executive Medical Director, Vertex Pharmaceuticals 

Jack Johnson

Executive Director, Fabry Support & Information Group

First Name Last Name

Title/Org

Dr. Delphine Tuot, MDCM, MAS

Associate Professor, UCSF Division of Nephrology at ZSFG Associate Chief Medical Officer, Specialty Care & Diagnostics at ZSFG Director, UCSF Center for Innovation in Access and Quality Associate Faculty, UCSF Center for Vulnerable Populations

Dr. Manish Maski, MD, MMSc

Global Medical Head, Rare Nephrology, Sanofi Genzyme

First Name Last Name

Title/Org

Dr. Pablo Garcia, MD, MS

Nephrologist

Dr. Samuel Dagogo-Jack, MD, DSc

Director, Division of Endocrinology, Diabetes & Metabolism at University of Tennessee Health Science Center

Dr. Neha Pagidipati, MD, MPH

Assistant Professor of Medicine in Cardiology, Duke Clinical Research Institute

Melanie Paris, M.A., MPH

Senior Director of Health Initiatives and Education, American Kidney Fund

Dr. Kirk Campbell, MD

Professor of Medicine, Nephrology at Icahn School of Medicine at Mount Sinai

Dr. Patrick O. Gee, Sr., Ph.D., JLC

Founder & CEHD, iAdvocate, Inc.

Melanie Paris, M.A., MPH

Senior Director of Health Initiatives and Education, American Kidney Fund

Dr. Rachel Perlman, MD, FACP

Clinical Associate Professor, Specialty in Nephrology and Internal Medicine at University of Michigan Health

Nieltje Gedney

Executive Director, Home Dialyzors United

Leigh-Ann Williams, MPH, MS

American Kidney Fund Ambassador Post Masters research fellow at Dillard University

Dr. Graham Abra, MD

Clinical Assistant Professor, Stanford University Vice President, Medical Affairs and Home Therapy, Satellite Healthcare

Dr. Julie Wright Nunes, MD, MPH

Associate Professor of Medicine, Dept of Int. Med, University of Michigan Health System

Kathy Wong, RDN

Registered Dietitian Nutritionist

Shauna Phillips, LCSW

Manager Social Work Services Zone 3 Co-chair Social Work Advisory Board

Kerry Leach, MHA, BSN, RN

Regional Operations Manager, Davita

Nichole Jefferson

American Kidney Fund Ambassador

Dr. Jamie Green, MD, MSc

Associate Professor of Medicine and Clinical Research, and Co-Director of the Kidney Health Research Institute, Geisinger Health System

Dr. Yoshio Hall, MD, MS

Professor, Division of Nephrology, University of Washington

Amanda Lane, MS, RD, LDN

Renal Registered Dietitian, University of Florida Health

Tamara Ruggiero, M.Ed

Vice President of Communications and Marketing, American Kidney Fund

Cindy Vallette

American Kidney Fund Ambassador and Kidney Disease Advocate

Michael Spigler, MCHES

VP of Patient Services and Kidney Disease Education, American Kidney Fund

Dr. Akhtar Ashfaq, MD

Internist and Nephrologist

LaVarne Burton

President and CEO, American Kidney Fund

Congresswoman Lisa Blunt Rochester (D-DE)

Assistant Whip for House Leadership

Dr. Frances Ashe-Goins, RN, MPH, FAAN, Ph.D. (hon)

Adjunct professor at the University of South Carolina; Former Deputy Director for the U.S. Department of Health and Human Services (HHS) Office on Women’s Health (OWH)

Dr. J. Keith Melancon, MD

Chief of the GW Transplant Institute and professor of surgery at The George Washington University Hospital

Dr. Ken Sutha, MD, Ph.D.

Instructor of Pediatrics and Nephrology, Stanford University

Eric Dolby, Sr.

Patient and American Kidney Fund Ambassador

Nichole Jefferson

Patient and American Kidney Fund Ambassador

First Name Last Name

Title/Org

Dr. Blake Shusterman, MD

 Organization Nephrologist & The Cooking Doc, Carolina Nephrology

Melanie Paris, M.A., MPH

Senior Director of Health Initiatives and Education, American Kidney Fund

First Name Last Name

Title/Org

Dr. Lawrence Edwards, MD, MACP, MACR

CEO, Gout Education Society

Ellery Payton, Jr.

American Kidney Fund Ambassador

Theresa Caldron, RN

American Kidney Fund Ambassador

Josie Cooper

Executive Director, Alliance for Gout Awareness

Dr. Chun Lam, MD

Senior Director in Global Clinical Development in Nephrology, Otsuka America Pharmaceutical

Dr. Chris Rusconi, PhD

Chief Research Officer, Polycystic Kidney Disease Foundation

Greta Ellis

Patient and PKD Foundation Advocate

Dr. Elaine Ku, MD, MAS

Associate Professor, Divisions of Nephrology and Pediatric Nephrology, University of California, San Francisco

LeighAnn Saylor

Caregiver and American Kidney Fund Ambassador

Michael H. Saylor

Patient and American Kidney Fund Ambassador

Helen Christensen, RN, MHA

Living Kidney Donor Facilitator, UCSF

Dr. Katherine M. Wang, MD, MS

Clinical Research Fellow at Harvard Medical School; Associate Physician at Brigham and Women’s Hospital in the Division of Renal Medicine

Crystal Scott

Patient and American Kidney Fund Ambassador

Dr. Silas P. Norman, MD, MPH

Associate Professor of Medicine, Dept of Int. Med, University of Michigan

Michael Spigler, MCHES

VP of Patient Services and Kidney Disease Education, American Kidney Fund

Carolyn Feibig, MS, RD, CCTD

Thoracic Transplant Dietitian, Inova Heart and Vascular Institute

Dr. Daniel Cukor, Ph.D.

Director, Behavioral Health, The Rogosin Institute

Hannah Graves, LMSW

Transplant Outreach Social Worker, Piedmont Transplant Institute

Dawn P. Edwards

Wellness Ambassador, The Rogosin Institute Patient Advocate, Fresenius/NxStage Medical Co-Chair, Forum of ESRD Networks Kidney Patient Advisory Council (KPAC) Patient Advisor, NIH/NIDDK Advisory Council

Carlos Aparicio, MSW, LCSW-C

Director of Health Initiatives, American Kidney Fund

Thank you to our Kidney Action Week Sponsors!

Nation’s leading kidney nonprofit

Fighting on All Fronts

AKF works on behalf of the 37 million Americans living with and at risk for kidney disease. From prevention to life after a transplant, AKF supports people wherever they are in their fight against kidney disease.

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